About

Hi, I’m Susan. I’m Irish, live in London, currently doing a PhD on fatigue in paediatric multiple sclerosis, and training to be a health psychologist. I write, I run, I travel, I dabble in make-up artistry, I wine & dine, and I’m lucky enough to have a wonderful bunch of people in my life. I also happen to have Mayer-Rokitansky-Küster-Hauser Syndrome, or MRKH. MRKH is a congenital anomaly of the female reproductive tract. Women with MRKH are born with normal ovaries and fallopian tubes, but with an absent or underdeveloped uterus, cervix and vagina. Women with MRKH cannot carry a pregnancy, but if they choose to, can have treatment to create a “normal” length vagina by stretching the tissue that is already there but shorter than typical length. Ten years post diagnosis, having facilitated support groups and spoken at conferences, writing openly about it just feels like the right thing to do. To the 1 in 5,000 women with MRKH, I hope you find something helpful in my writing. To everyone else, I hope there’s something in it for you too.